Living with Long-Haul Covid symptoms

This isn’t the blog post I wanted to write – this isn’t the life I thought I’d be living. That said I’m not intending to be a victim, and see my own body and symptoms as my teachers and healers. Understanding how to make the best of a bad situation is important to me, and going deeper into the process is my path and choice…

It all started at the end of January, 2020. I had a severe flu like illness, but nobody was talking about Covid yet. I, like many others, kept thinking “this is really the worst flu I’ve ever imagined” and the fatigue and aches and pains were intense almost leading to hospitalization but not quite. There was one night, when I had to sleep propped upright so I could breathe that I thought “if this gets any worse I’ll need to go to the hospital” but thankfully that was the worst moment for me – not for many others, though.

After a month in bed with crippling fatigue, and all kinds of strange pain, mostly focused in my legs – I knew I needed to get some exercise and start moving. I felt 85 years old (I’m a couple of decades younger than that) and could only walk bent over, and shuffling… a return to yoga, or sitting cross legged or just about any physical activity was impossible. After several practitioners didn’t understand what I was going through (they actually said “you’re fine, get going”) I found a chiropractor who understood that I had “frozen hips” or “adhesive capsulitis”. which is a condition that is comes and goes mysteriously – usually after prolonged inactivity…

This was the true beginning of ongoing and extended healing journey which has led to uncovering other major issues that continue to plague my life. I somehow tore a muscle in my thigh (OUCH!) and ruptured a disc in my low back. I’ve never had back trouble, or torn a muscle and I can honestly say i do not recommend either experience….and oh yeah, the muscle pain in my legs continues to baffle and trouble me. I get stiff when I’ve done too much, I can’t walk too much without a lot of pain the next day. I asked the practitioner how to know if I’m overdoing it and he said “because it hurts the next day”. So, caught between a desire to be active and a desire to heal completely I drift… wondering and trying to be more in touch with my body. It’s hugely challenging.

I was pretty active much of my life – bicycling, hiking, running, whitewater rafting, snorkeling and ocean swimming… then I got into extreme gardening (really!) and singlehandedly propagated thousands of plants to start a nursery. I can’t even dream of such activities these days. Walking to the mailbox is an ordeal… it’s about 50 yards up the hill and that takes all I’ve got. It’s been more than two years, almost three… or so…I have to constantly remind myself of the progress I’ve made from barely being able to sit up… not able to walk at all… to walking with a cane. I’m only 67 and this just isn’t how it was going to be.

Sometimes I find myself wanting to tell others about my challenges and when I do it usually elicits a response something like this “oh, me too I have _____ (you name it, back trouble, some other kind of trouble or maybe even cancer) and I realize that in this life there are many challenges, and health challenges can surely top the list. I took my own health for granted, and complained mightily about things that upon reflection clearly just weren’t that bad. I’m sorry to whoever I complained to.

Coming on 3 years life has been redefined for just about everyone on planet Earth. Lockdowns are common, fear of disease is rampant and it seems we’ve all become infected with PTSD, since life is traumatic. What is the cure? There is only one real direction to look and that is towards the big questions – what is the purpose of our lives? Is it happiness? Connection? Work? For me the only answer is creativity and inquiry. I’ve been mostly practicing the Wim Hof breathing method in the mornings and I found that when I am thinking of the challenges of my life and am overwhelmed by them I have a very short breath hold during that part of the session. When I wake up to that and replace the negative thinking with the picture of a sunflower then instantly my lung capacity increases and I feel better. Is it really that simple? I’ll let you know, or better yet, give it a try yourself and let me know.

Life is a dance and when my legs don’t work I dance with my arms. I’m not trying to belittle the experience just reflect what works when I start the rapid descent into self pity or am overcome by the pain and refusal of my body to cooperate like it used to. Looking around when I go out into the world I realize that I never did feel enough compassion for all the people walking around with canes, or crutches or in a wheelchair. They are most likely in some discomfort and pain, or they wouldn’t be using the crutches…and I want to send them some compassion and now I feel a sense of sisterhood with all of humanity that doesn’t have full health and can no longer do a wide range of yoga poses. This is how we learn, the hardest lessons of life come through experience.

And after regaining some mobility and finding ways to reduce the extreme pain I can only turn one way for purpose and that is to creativity in any of its forms. I bought watercolor paints, I chose some sewing projects, decided to learn to play bass guitar and I hired help to revive my overgrown gardens… One step at a time back into a life that feels good, that functions well and continuing on whether or not I can ever walk a mile again…this is how it goes.

Please let me know how you have coped with your extended illness and physical disability. I’m wondering if I can get the handicapped parking sticker! Surely I can find more benefit in this day’s possibilities even from my living room chair…

Love – the mirror

The shadow part of our unconscious has a talent and desire to cause trouble for us. So it becomes of paramount important to find a way to prevent the meddlesome troublemaking of our shadow sides.

I have lived most of my life believing that love is always positive, that love only speaks the kindest truth… that love sees with the heart. And I still believe this but as a new way of discerning kindness has been shown to me. It has become very clear to me that a very effective way to see ourselves is to use love, friendship or intimacy as a mirror and allow the love to open us more fully to ourselves and also to see the places we may not see clearly ourselves. Only in a trusted connection of friendship and real love can this function in the highest way.

There is a necessity to be able to face all of ourselves, the light and the dark to continue growing and expanding in higher consciousness. Our shadow side is sneaky, when we look there, our shadow diappears! It can only be seen by looking behind and those who have the best view are often outside ourselves. Our friends and family can help us to become the people we want to be with loving feedback and observation.

This is tricky turf, though. In many relationships and families most of us have witnessed this process being subverted through criticism and verbal abuse. The eyes of love do not see in a judgmental way. Love is patient, love is kind… love especially is kind.

Cultivating relationships and intimacies with others can help us see where we are on the path – “as within, so without”. What kinds of friends do you have? How are they reflecting your shadow side back to you? Awareness is the first big step towards change and healing.

There is another sneaky way the human mind can cloud the mirror, and it is fairly common and very hard to detect from the inside. It is called “projection” where we imagine others to be making us our victims when we are also enacting the behavior we judge in others. By listening to our own judgements of others we can learn to perceive ourselves more clearly, clean our mirrors and heal the ways we judge ourselves and project that outward into the world.

Our shadows want to be seen, to be acknowledged and respected. When that doesn’t happen there are some interesting ways the shadow demands attention. For one there can be a tendency for those with troubled feelings to find someone to whom they can “confess” their darker thoughts and tendencies. It is a cry for help, and a cry for loving attention. The shadow part of our unconscious has a talent and desire to cause trouble for us. So it becomes of paramount important to find a way to prevent the meddlesome troublemaking of our shadow sides. This really is BIG work. Therapists are one powerful avenue towards self -love, and it is important to feel support and respect in that relationship. Close friends can also help us, as can intimate partners. The enmeshment of intimacy does seem to cloud things though and it may not be best to depend on your partner for this support. Sometimes it works to engage in “co-counseling” with a friend where you share time, each giving and receiving emotional support and loving feedback.

I love to contemplate the story of the Chinese Goddess of Compassion – Kwan Yin. She is so filled with love and compassion that she actually rides a dragon to her destination. I understand this to be the illustration of the truth that only love, more love and more compassion can fully integrate the powerful, fiery, potentially destructive parts of our psyche into balance to serve the highest good.

How have you tamed your dragons today? Let’s talk!

Exiting the Chrysalis

th

I have spent countless hours observing caterpillars, chrysalis and butterflies.  I have witnessed the challenge, the risk and the glory of metamorphosis.  Each transition is difficult – when the caterpillar hatches it is fine food for birds, lizards and other critters.  As they grow into adulthood, the caterpillar needs to find a safe place to cocoon.  This is not an easy search for such a small being, and there are many hazards on the way.  Once again, they can be eaten by birds, or other creatures, crushed by man or animal or run out of time in their quest.

When the caterpillar finds a suitable place (or unsuitable, time will tell, a Monarch caterpillar once made its chrysalis on a hinge and almost made it until an unwitting guest closed the door… sadly…) I digress – It attaches to the wall.  It needs to hold on in order to let go. That always tickles me to say, paradoxes are my thing!  Then comes the intense part as the caterpillar’s body seems to dissolve.  Sometimes they just don’t make it through this process, it can’t be easy.  If they do make it then they become another kind of being.  A being stopped in time.  Some of them have little faces, others look like dangly jade earrings but all of them are specialized and precise.  For in some period of time, from a couple of weeks to a couple of years, the butterfly will emerge.

The monarch butterfly emerging is a miracle of nature I’m overawed to have witnessed many times.  As the jade green chrysalis approaches hatching time, the skin begins to become transparent and the butterfly inside is seen as a kind of origami puzzle.  When it breaks out of the cocoon it is a fragile being.  It takes time to dry off its wings and is very vulnerable for even a gust of wind can knock it to the ground and its wings will deform.  They can’t take off yet so are at the mercy of any nearby bird.  And yet, many of them flutter happily (I project) into the sunlight.  Butterflies can’t fly in cold weather so they are always beacons of springtime.

Once they are aloft they have two activities to fulfill.  They sip nectar and aid in pollination as a side effect.  They make love and procreate.  I once watched a monarch butterfly couple do their coupling for almost an hour.  When it was complete, he (I imagine, perhaps wrongly) lifted her up and flew her up to a branch where they rested for a while.  It’s a short life, but valuable for sure.

Why am I rambling about this right now?  We’re quarantined to be safe from the corona virus, we’re watching our world come to a standstill.  We are cocooned.  It is a challenge perhaps the biggest challenge of our short lives.  Life, as we imagined it was, has ceased to be.  We have let go, collectively and individually.  We have let go of activity for the most part.  We’re not allowed to gather or recreate together.  It’s very strange.  It seems unnatural.  For those of us who have meditated and vision quested it is not difficult but most people have spent their lives avoiding being alone and quiet and listening to their inner voice.

What’s next?  I imagine us, like the butterfly, emerging slowly from this cocoon.  Taking it one tiny step at a time, into the sunlight.  Everything has shifted and I hope that we can collectively make more loving choices as we recreate our systems to better serve humanity and our ecosystem.  There are some important things each of us can do to contribute and “be the change”.  We can get comfortable with ourselves, honest and true and be clear on what we stand for.  I stand for love, for caring, for holding each other up with nobody left behind.  I think a basic universal income and guaranteed housing would be a fantastic place to start.  All the money spent on the war machine can be turned to providing that and health care, education and funding for the arts.  Animal agriculture should be ended and hemp and cannabis farms allowed to prosper and provide.

The sky is the limit!  What kind of world do you want to live in?  Keep marinating in your cocoon and we can discover that together….I love you!